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Welcome to

Avery's Hope

Raising Money and Awareness for Rare GI Pediatric Patient Families.

Our mission

Avery’s Hope provides financial assistance to the rare, ultra rare and undiagnosed pediatric GI patient families facing out-of-pocket and insurance denied expenses. Money raised benefits the HOPE Family Fund for the Department of Gastroenterology, Hepatology & Nutrition at Children’s Hospital of Philadelphia, The Acacia Puleo Small Bowel/Liver Transplant Patient Assistance Fund at Children’s Hospital of Pittsburgh, Patient Assistance for children who have developed GI complications from cancer, or cancer treatments, at St. Jude Children’s Research Hospital and Patient Assistance for the GI Department at Texas Children’s Hospital and Boston Children’s Hospital. Avery’s Hope also offers small individual awards to families in need. The organization also partners with NORD – National Organization for Rare Disorders and offers a Rare Pediatric GI Lodging Assistance Program.

This all volunteer organization also advocates on behalf of the rare pediatric GI patient families by serving on the Every Life Foundation Access and Newborn Screening groups. Avery’s Hope is also a member of the Global Genes Patient Alliance and is a member of the National Organization for Rare Disorders.

Join us in raising money and awareness for the rare disease community.

 

 

 

Our next event is our 9th Annual #CaringForRare Cycling Event. Register to ride or volunteer at bikereg.com/caringforrare-cycling-event.

Get involved where it matters

Connect with us and make a real difference to the life of those in need.

Get Involved

Your generosity makes our work possible. Whether you contribute financially or as advocate for good.

Learn more about our causes

Your generosity makes our work possible. Whether you contribute financially or as advocate for good.

Your Support and our impact in 2022
Fundraising Events
0
Donations to Patient Assistance Funds
1
BrAvery Awards
1
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how you can help

Make a donation

Your generosity makes our work possible. Whether you contribute financially or as advocate for good.

Register for Events

We welcome you to join us at any of our events, either as a participant or volunteer.

Keep In Touch

Reach out to us if you have a question, are in need of a resource, or want to get involved.

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