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Our End-of-Year Giving

    As a patient assistance organization we know how hard it is for our patient families to navigate the rare disease journey along with the financial hardship. Thank you to all who have supported our mission through volunteering, sharing information, donating, sponsoring and more.  Board President, Carie Chester, and Executive Director, Caryl Harris, donated $17,000 on behalf of Avery’s Hope, to the HOPE Fund for Families for the Department of Gastroenterology at Children’s Hospital of Philadelphia We also donated “Go To” Hygiene Bags for families spending time with their children in the hospital. We were also able to start a brand new fund at St. Jude Children’s Research Hospital for patients in need of diagnosis for Juvenile Polyposis Syndrome and Constitutional Mismatch Repair Deficiency Syndrome in their Cancer Predisposition Program. Donations were also made to Boston Children’s Hospital, Children’s Hospital of Pittsburgh and Texas Children’s Hospital. We were also able to help many families through our BrAvery Award Program.