Eric

Registration is now open for the 2020 #CaringForRare Bicycling Event Weekend. Challenge yourself to ride 15, 31, 62 or 100 miles on September 19th & 20th, VIRTUAL TOGETHER! This is… 

RAM is a rare disease community leadership network founded on the premise of developing mutually beneficial collaborations between rare disease community leaders, influencers, experts and other rare disease stakeholders, with… 

Dear Friends, Due to the coronavirus (COVID-19) outbreak, we made the difficult and appropriate decision to cancel our Mini Golf Outing at Pine Creek Miniature Golf on May 3rd. Here’s… 

It happened again — another line infection. As we walked into Avery’s hospital room we watched as our son held down our beautiful and beautifully rare grandson as the phlebotomist… 

Avery’s Hope has been very busy getting ready for their signature charity bicycling event on September 15th and 16th. This year’s event will take riders through scenic and historic Hunterdon… 

Rare Disease Week on Capital Hill During the last week of February, the Every Life Foundation for Rare Diseases held a conference in Washington, DC. The Rare Disease Week on… 

For the third year in a row, Avery’s Hope is offering a Bicycling Event that raises money and awareness for children living with rare gastrointestinal diseases and their families who… 

What? Whether you celebrate Valentine’s Day or not, any day is the perfect day for the finest, fair traded, hand made and most delicious chocolates. Make a difference by getting… 

How will you help families in need this holiday season? An end-of-year donation to Avery’s Hope will help a family pay out of pocket expenses, pay for medications, tests, and/or…