TopGolf Fun & Games
Join us on June 25th at 1:30 p.m. for an afternoon of TopGolf. Bays of 6 “golfers” will enjoy all of the variety of games….no golfing experience necessary and all…
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Board & Brush Evening Benefiting Avery’s Hope
Date: January 21, 2023 Time: 6:30 pm – 9:30 pm Location: Board & Brush, South Brunswick, NJ Register Here Looking for a fun way to connect with family and friends…
New Hope Run Club’s Run/Walk for the Zebra
Date: Saturday, February 25, 2023, Rare Disease Week Location: New Hope, PA 18938 Register Here The Zebra 5K Run/Walk is an in person or virtual 5K run OR walk! Why…
Our End-of-Year Giving
As a patient assistance organization we know how hard it is for our patient families to navigate the rare disease journey along with the financial hardship. Thank you to all…
Get Ready for #GivingTuesday
Avery’s Hope was created to help families on the rare disease journey with their out-of-pocket and insurance-denied expenses. This organization offers BrAvery Awards for families in need and works with…
BioTechX Conference
Caryl Harris, Executive Director and Carie Chester, Board President will be presenting at the BioTechX international conference to bring the human side of rare disease to researchers, clinicians and AI…
#CaringForRare Cycling Event Was a Huge Success
In collaboration with The Federal Twist Vineyard, Kermesse Sport and V5 Cycles, 170 riders traveled up to 100 miles through the beautiful back roads and trails of both Hunterdon and…
Spring Updates!
Join Us at Our Upcoming Events Dine & Donate at Owowcow, Lambertville June 2, 2022, 4-7 pm Mention Avery’s Hope when ordering!! 20% of all purchases will be donated.…
Avery’s Hope: Rare Pediatric GI Lodging Assistance Program
National Organization for Rare Disorders (NORD) is proud to announce a newly offered patient assistance program in partnership with Avery’s Hope. This program is now open thanks to…
The Roadmap for Equity Pledge: ENCOURAGING the development of Diversity, Equity and Inclusion (DEI)
A group of diverse advocates of color, encouraged by the surge of statements in solidarity regarding the value of Black lives, launched the Roadmap For Equity Pledge. The pledge required…
Registration is now open!
Registration is now open for the 2020 #CaringForRare Bicycling Event Weekend. Challenge yourself to ride 15, 31, 62 or 100 miles on September 19th & 20th, VIRTUAL TOGETHER! This is…
What is the Rare Advocacy Movement (RAM)?
RAM is a rare disease community leadership network founded on the premise of developing mutually beneficial collaborations between rare disease community leaders, influencers, experts and other rare disease stakeholders, with…
COVID-19 Update: Mini Golf Outing canceled
Dear Friends, Due to the coronavirus (COVID-19) outbreak, we made the difficult and appropriate decision to cancel our Mini Golf Outing at Pine Creek Miniature Golf on May 3rd. Here’s…
What It’s Like to Watch Your Grandchild Live With a Rare Disease
It happened again — another line infection. As we walked into Avery’s hospital room we watched as our son held down our beautiful and beautifully rare grandson as the phlebotomist…
Most Recent Updates!
Avery’s Hope has been very busy getting ready for their signature charity bicycling event on September 15th and 16th. This year’s event will take riders through scenic and historic Hunterdon…
March Newsletter
Rare Disease Week on Capital Hill During the last week of February, the Every Life Foundation for Rare Diseases held a conference in Washington, DC. The Rare Disease Week on…
How Will You be #CaringForRare
For the third year in a row, Avery’s Hope is offering a Bicycling Event that raises money and awareness for children living with rare gastrointestinal diseases and their families who…
Chocolate Gives Hope to Families Living Rare
What? Whether you celebrate Valentine’s Day or not, any day is the perfect day for the finest, fair traded, hand made and most delicious chocolates. Make a difference by getting…
Season’s Greetings!
How will you help families in need this holiday season? An end-of-year donation to Avery’s Hope will help a family pay out of pocket expenses, pay for medications, tests, and/or…