Dormie Network, a collection of luxury, private destination golf clubs, is thrilled to announce Avery’s Hope and its TopGolf Fundraiser for Avery’s Hope held June 25, as the winner of…
Join us on June 25th at 1:30 p.m. for an afternoon of TopGolf. Bays of 6 “golfers” will enjoy all of the variety of games….no golfing experience necessary and all…
Save the Date: Wednesday, March 22nd at 11:00 a.m. – 3:00 p.m.
Date: January 21, 2023 Time: 6:30 pm – 9:30 pm Location: Board & Brush, South Brunswick, NJ Register Here Looking for a fun way to connect with family and friends…
Date: Saturday, February 25, 2023, Rare Disease Week Location: New Hope, PA 18938 Register Here The Zebra 5K Run/Walk is an in person or virtual 5K run OR walk! Why…
Up to 100 miles; 100% volunteer and 100% to charity. Date: Sunday, September 17, 2023 Location: The Federal Twist Vineyard, 8 Federal Twist Road, Stockton, NJ Participants: Register Here Sponsorship…
As a patient assistance organization we know how hard it is for our patient families to navigate the rare disease journey along with the financial hardship. Thank you to all…
Avery’s Hope was created to help families on the rare disease journey with their out-of-pocket and insurance-denied expenses. This organization offers BrAvery Awards for families in need and works with…
Caryl Harris, Executive Director and Carie Chester, Board President will be presenting at the BioTechX international conference to bring the human side of rare disease to researchers, clinicians and AI…
In collaboration with The Federal Twist Vineyard, Kermesse Sport and V5 Cycles, 170 riders traveled up to 100 miles through the beautiful back roads and trails of both Hunterdon and…
Join Us at Our Upcoming Events Dine & Donate at Owowcow, Lambertville June 2, 2022, 4-7 pm Mention Avery’s Hope when ordering!! 20% of all purchases will be donated.…
National Organization for Rare Disorders (NORD) is proud to announce a newly offered patient assistance program in partnership with Avery’s Hope. This program is now open thanks to…
A group of diverse advocates of color, encouraged by the surge of statements in solidarity regarding the value of Black lives, launched the Roadmap For Equity Pledge. The pledge required…
Registration is now open for the 2020 #CaringForRare Bicycling Event Weekend. Challenge yourself to ride 15, 31, 62 or 100 miles on September 19th & 20th, VIRTUAL TOGETHER! This is…
RAM is a rare disease community leadership network founded on the premise of developing mutually beneficial collaborations between rare disease community leaders, influencers, experts and other rare disease stakeholders, with…
Dear Friends, Due to the coronavirus (COVID-19) outbreak, we made the difficult and appropriate decision to cancel our Mini Golf Outing at Pine Creek Miniature Golf on May 3rd. Here’s…
It happened again — another line infection. As we walked into Avery’s hospital room we watched as our son held down our beautiful and beautifully rare grandson as the phlebotomist…
Avery’s Hope has been very busy getting ready for their signature charity bicycling event on September 15th and 16th. This year’s event will take riders through scenic and historic Hunterdon…
Rare Disease Week on Capital Hill During the last week of February, the Every Life Foundation for Rare Diseases held a conference in Washington, DC. The Rare Disease Week on…
For the third year in a row, Avery’s Hope is offering a Bicycling Event that raises money and awareness for children living with rare gastrointestinal diseases and their families who…
What? Whether you celebrate Valentine’s Day or not, any day is the perfect day for the finest, fair traded, hand made and most delicious chocolates. Make a difference by getting…
How will you help families in need this holiday season? An end-of-year donation to Avery’s Hope will help a family pay out of pocket expenses, pay for medications, tests, and/or…
