We are extremely grateful to our event participants, our donors, business and community sponsors and supporters. Our mission is not an easy one and we are very aware that the past few years has put a strain on so many.
That strain is magnified in the rare disease community and with your assistance we have been able to help five patient assistance programs at children’s hospitals, help individual families with their out-of-pocket and insurance-denied expenses and we are looking to the future to collaborate with other non profits to provide the financial assistance so desperately needed.
We could not have done any of this without your help. Please take some time and read our 2022 Gratitude Report and learn about how your money has improved the lives of rare, ultra rare and undiagnosed pediatric GI patient families.